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Tag Archives: Spinal Muscular Atrophy

Support Philly: Friends of Philly 7th Annual Golf Outing

A Thousand More

Philly Mayer’s story made A Thousand More one of our most powerful workshop projects to date. The short film documents his family‚Äôs determination to give their son a whole and vital life after Philly was diagnosed with Spinal Muscular Atrophy, a genetic disease that leaves the spine underdeveloped. Philly is still going strong and you [...]

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Sixth Annual ‘Friends of Philly’ Golf Outing

a-thousand-more-2

Friends of Philly is holding its Annual Golf Outing on Saturday, September 8 in Rockaway, New York. Come to golf, or if you’re not a golfer, attend the luncheon or sponsor a hole. Friends of Philly Fund is a charitable organization committed to lifting some of the financial and emotional burdens on families who care [...]

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