Sixth Annual ‘Friends of Philly’ Golf Outing
Friends of Philly is holding its Annual Golf Outing on Saturday, September 8 in Rockaway, New York. Come to golf, or if you're not a golfer, attend the luncheon or sponsor a hole. Friends of Philly Fund is a charitable organization committed to lifting some of the financial and emotional burdens on families who care for children suffering from Spinal Muscular Atrophy (SMA), a genetic motor neuron disease that affects about one in 6,000 babies. Your care and support gives strength to these special children and their families. Join Philly Mayer in his fight against Spinal Muscular Atrophy. See details about the event below. MediaStorm produced a story about Philly and his family, A Thousand More, in the MediaStorm Storytelling Workshop. A family is determined to give their disabled son a whole and vital life. In the midst of a great burden, one small child – with a seemingly endless supply of…