Philly Mayer’s story made A Thousand More one of our most powerful workshop projects to date. The short film documents his family’s determination to give their son a whole and vital life after Philly was diagnosed with Spinal Muscular Atrophy, a genetic disease that leaves the spine underdeveloped.

Philly is still going strong and you can join in his fight against Spinal Muscular Atrophy, a disease occuring in an estimated 1 out of every 6,000 births. The Friends of Philly 7th Annual Golf Outing supports the Philly Fund’s commitment to lifting some of the financial and emotional burdens on families who care for these special children.

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